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Lily’s LuLaRoe Leggings Heaven

One of the issues we deal with constantly is Lily’s tactile sensitivity. Some materials bother her. The cuts of some of her clothes, particularly pants, agitate her. Add to that, she is now in a walking boot.

Jeans don’t fit over her boot. Jeans don’t feel comfortable in her boot. She’s been wearing leggings as much as possible.

Thankfully, awesome LuLaRoe fashion consultant, Jennifer Langford, came to our rescue. She hooked Lily up with several pairs of the company’s buttery soft leggings.

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We also came home with two kid’s Azure skirts, two Gracie shirts, and an Adeline dress. I’m hoping that with the LuLaRoe leggings that Lily already has, this will making having to wear a walking boot less annoying for her.

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Jennifer is a LuLaRoe fashion retailer in New Haven, Indiana. She started her business in 2016. “I am happy to help you find the most comfortable, fun, and flattering clothes to make you feel fantastic.”

LuLaRoe Jennifer Langford

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Sleep Isn’t Overrated

I really thought that we were seeing some progress with Lily’s sleep.

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Lily’s sleep stats for November 18-22.

Last week, she was getting her 9 hours of sleep 28% (2 nights out of 7) or having uninterrupted sleep 14% (1 night out of 7).

This week, she got her 9 hours of sleep 28% (2 nights out of 7) and had uninterrupted sleep 0% (0 nights out of 7).

It seems that she gets the quality or the quantity of sleep, but not both. On the nights that she gets enough sleep, she tends to have several periods of being awake. On nights that her sleep is uninterrupted, she doesn’t seem to get enough.

ADHD is notorious for causing sleep problems.

I relayed this to the nurse today. She really felt that it was a question more for the doctor.

We had discussed trying low-dose Clonidine to help her sleep. Clonidine (Catapres) is a blood pressure medication, but treating sleep issues associated with ADHD is one for Clonidine’s off-label uses.

We are going to try this for a week and follow-up. I’m hopeful. Even if this doesn’t work or has minimal results, we’ve eliminated one more thing.

ADHD and Sleep
Clonidine for sleep disturbances associated with attention-deficit hyperactivity disorder: a systematic chart review of 62 cases.
Off-label use of clonidine

I didn’t know my kid wasn’t sleeping well!

I’m a fan of fitness wearables. I wore a Jawbone UP for several months before making the leap to a Fitbit Charge HR. I even wore the Jawbone and Fitbit together for a while to compare accuracy and data.

When I finally decided that I would go with the Fitbit, I let my 8-year-old have my Jawbone. She was in Girls on the Run and wanted to see how far she was running. I adjusted the goals in the app to better suit her (5,000 steps and 9 hours of sleep).

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Lily’s sleep for November 19-20, 2015. She woke up 4 times.

I hadn’t anticipated using the sleep data for her. I really didn’t think that she was having trouble sleeping. Soon, I started seeing patterns in her sleep and wake cycles and being able to correlate that with her behavior. When she had longer wake periods throughout the night, she behavior was affected during the day.

I started keeping a journal of her sleep with the data I got from the Jawbone and the behavior I observed. On the nights that she was having issues getting to sleep or staying asleep, I started asking her questions. It broke my heart when she was crying because she couldn’t shut her mind off.

How long has this gone on? How did I miss it?

Enter the Mom guilt.

I researched the accuracy of fitness wearables and didn’t find much. It’s still a relatively new technology to be applied to children. I did find an article that tested children wearing fitness trackers. While none tested were either that I’ve tried, it did give me hope that the research exists and more is in the works. Another article also pointed to the challenges of fitness trackers for kids. One being that children are more active in their sleep than adults and that the band could give some inaccurate results for sleep.

Was I being over-analytical? Was I creating a problem that didn’t need to exist?

I did some research about how much sleep an 8-year-old should get. Between 9-11 hours according to the National Sleep Foundation.

I tracked her sleep for a few weeks before calling our pediatrician. I relayed my concerns and scheduled an appointment. She was due for a med-check anyway. Of course, expect for the day of the appointment, she’d slept great, with only a few days where she’d had significant sleep disturbances.

Okay, I overracted. No harm done. Her grades are fine. No complaints from her teacher.

Except that she can’t get to sleep and doesn’t stay asleep. Some nights she’s up for hours in the middle of the night. Sometimes she will wake me up, other times she won’t. She’ll play. She’ll read.

She was crying the other day, exhausted, wanting to fall sleep. Tears streaming down her face that she can’t shut her mind off. She told me about the ponies (her My Little Pony toys that she’d been playing with), the math facts she’d been working on at school, the book she’d been reading.

More Mom guilt.

So, back to the drawing board we go!

Quantified Kids: Researchers Test Fitness Trackers in Youngsters
Fitness Trackers Could Boost Kids’ Health, But Face Challenges, Experts Say
Children and Sleep