Tag Archive | osteochondritis

Goodbye 2018, Hello 2019

I can’t believe that 2018 is over. This year has had so many changes, that it’s hard to believe that it was all packed into 365 days. I’m kinda hoping that 2019 is a little more mellow!

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January started with a trip to Chicago to visit friends and ring on the New Year. We visited an Ikea in Illinois while we were there. Lily also started flute lessons to help her catch up with the rest of her band. I started playing with my cooking gadgets. Navy loves wrestling club. Continue reading

Goodbye 2017, Hello 2018

So much changes over the course of a year. 2017 was no exception. Not only was it a fresh start from 2016, but it ushered in a lot of change and excitement for our family.

January 2017

img_7211After having lots of issues with the battery on my van dying, I got a fancy new battery. It’s okay to be jealous. Thankful to not have any more issues.

Girl Scout Cookie season started. The beginning of the longest two months ever. I love the cookies, but I’m not sad when it ends in March.

Lily got an MRI on her ankle. She has Osteochondritis, but we didn’t know the extent until after the MRI.

I celebrated 10 years at work. I’ve been working with the same company for 10 years. That used to be the norm, but it isn’t so commonplace anymore. I love the girls I work with and adore our clientele. Continue reading

Lily’s LuLaRoe Leggings Heaven

One of the issues we deal with constantly is Lily’s tactile sensitivity. Some materials bother her. The cuts of some of her clothes, particularly pants, agitate her. Add to that, she is now in a walking boot.

Jeans don’t fit over her boot. Jeans don’t feel comfortable in her boot. She’s been wearing leggings as much as possible.

Thankfully, awesome LuLaRoe fashion consultant, Jennifer Langford, came to our rescue. She hooked Lily up with several pairs of the company’s buttery soft leggings.

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We also came home with two kid’s Azure skirts, two Gracie shirts, and an Adeline dress. I’m hoping that with the LuLaRoe leggings that Lily already has, this will making having to wear a walking boot less annoying for her.

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Jennifer is a LuLaRoe fashion retailer in New Haven, Indiana. She started her business in 2016. “I am happy to help you find the most comfortable, fun, and flattering clothes to make you feel fantastic.”

LuLaRoe Jennifer Langford

No Surgery!

We met with Dr. Wilhite from Peyton Manning Children’s Hospital. He evaluated the MRI results and examined Lily’s ankle.

He was pretty confident, looking at the grow plates in her ankle, that she will be able to avoid surgery!

The catch? She has to wear a walking boot for 6 weeks. She also is considered non-weight bearing and will be crutches or a walker.

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Lily will not be able to participate in gym or Girls on the Run until further notice. Learning the ins-and-outs of not being able to walk on her left foot will be an experience for all of us.

She will go back to see Dr. Wilhite at the end of April to have her ankle x-rayed and move forward with this process.

MRI Results

The MRI results are in!

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Lily’s ankle has an osteochondral defect (OCD) that is approximately 1 centimeter wide. It is almost half of the width of her ankle bone (talus).

Talking with her orthopedist, he feels that she would be better served by a pediatric orthopedic surgeon. Unfortunately, we don’t happen to have one in our area. She has been referred to a surgeon from Peyton Manning Children’s Hospital in Indianapolis.

Hoping that we are able to get an appointment with this new ortho Doctor in a few weeks to get this ankle of hers fix!

Hoping